Meet Jenna Boguhn. A spunky six-year-old who loves school, having painted nails, playing dress up, and being with her two older sisters. And while Jenna is so much like any other adorable six-year-old, Jenna has Spinal Muscular Atrophy. This Sunday, Rene ...
Rummage To Cure in Santa Barbara Raises $3,400 for The GSF
Santa Barbara's Rummage To Cure was a HUGE success and Team Gwendolyn ROCKS! Yep, they are A-M-A-Z-I-N-G! And Saturday's sale was another example of their awesomeness. So many in the community got involved. So many made this a success. And we ar ...
Our Dancing Diva
Gwendolyn loves music. She always has. Her favorite is to play music in the car (loudly and with the sunroof open) and to dance like crazy as we roll up to preschool or therapy. But she doesn't like any old song -- she likes a beat. She's so spe ...
Good Things For Gwendolyn: A Slumber Party with Hayden
Oh these two girls...they are just too much!Gwendolyn and Hayden just love each other and we were so excited to spend the weekend at Hayden's house -- a three day slumber party filled with fun, fun, fun! The Calafiores live about four hours north ...
Team Run For Owen Runs Ragnar Relay
200 miles. 12 runners. Two days. Running to end SMA!!! Team Run For Owen is always amazing and tomorrow they are embarking on a new incredible adventure -- the Ragnar Relay. This fabulous 12 person team starts their journey in Albany, New York and in rela ...
This Weekend’s Rummage To Cure Sales Raise Nearly $5,000 for the
Wow! Wow! Wow! This was a huge Rummage To Cure weekend. Two sales. Two locations. And two groups working to help END SMA!!! Lucy's Hope for a Cure in Fond du Lac, Wisconsin was a big success. For the second year in a row, Marjorie Trew-Munson organiz ...
Lullaby Blankies Helps End SMA!
In December I met Stephanie and Brandon Humes, owners of Lullaby Blankies. Stephanie reached out with an email about their story that goes something like this --> Gorgeous couple in love. Get married. Want to start a family. But Stephanie and Brandon ...
Paint Away SMA at Sips N Strokes in Knoxville, TN
Nora Gooden is surrounded by people who adore her and who fight SMA in her honor. And Nurse Kim is definitely one of them. The incredible Nurse Kim has organized a fun night with Sips N Strokes to "Paint Away SMA" in Knoxville, Tennessee on May 14th. Pai ...
Disneyland…Again
I can't believe we haven't posted about this yet because -- it was AWESOME! Last Monday we packed up for four days of Disneyland fun and we met the Calafiore family for some BFF fun -- a sequel to Gwendolyn's birthday trip in October, only ...
Hope Calendar Raises Over $8,000 For GSF
We are so excited! Debi Gomez of Life's Images Photography and the creator of the "Hope Calendar" just announced the final totals of the 2011 sales...Drum roll please....$8,110 was raised for the Gwendolyn Strong Foundation and our "$200K for SMA" ca ...