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Never Give UP. This is the mantra and rallying cry of an unstoppable community of kind humans dedicated to creating real change and a brighter future we all deserve.

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The latest Instagram inspiration from @NeverGiveUpOrg

This Sunday is Rare Disease Day. 350 Million peopl

This Sunday is Rare Disease Day. 350 Million people are impacted by rare disease — NOT so rare at all!

💟 There are over 7,000 rare diseases.
💟 50% impact children. Did you know all pediatric cancers are rare diseases?
💟 95% have NO treatments. SMA is one of the lucky few that NOW do — thanks to your support and our work!
💟 All of us carry genetic mutations and rare disease can happen to anyone!

Share your rare story in the comments so we can learn about your journey!

NEVER GIVE UP.

The Future Is Inclusive. And I’m proud to work t

The Future Is Inclusive. And I’m proud to work to make it so. Join us! Coming Soon!!! For the whole fambam!

Sharing this because it’s so important to talk a

Sharing this because it’s so important to talk about. I see it in my friends. In my community. In life with a sudden diagnosis. Mothers bear the brunt. And so we must support mothers in healing. And in ensuring this changes.

“It has been almost a year of pandemic life now, and moms need support more than ever — in the form of government policies, employer assistance or, closer to home, partners who share in more of the work, writes Claire Cain Miller. We also need it for the future, to ensure that we are never left stranded like this again. It’s not just mothers who need support, of course — fathers, grandparents and those caring for sick or aging relatives do, too. But mothers have shouldered the extra load."

Head to the our Instagram stories to read this full @nytparenting article and share your thoughts.

Something I get emails like this, the kind that li

Something I get emails like this, the kind that lift me and propel our mission forward. There’s a lot of behind the scenes in running a nonprofit, unglamorous must-dos that make up most of my time. So... on a random day to open an email grounding me in my purpose means the world. This is my why. This is NEVER GIVE UP.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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“I had ordered this amazing top for my daughter for Valentine’s Day, and could not wait to give it to her!! I ran up to her room with the package, and she was so excited....but then we realized there was a break in her Broviac (central line), and it was leaking. Elizabeth is TPN dependent, so a break in this line poses many risks and we had to stop and pack up for the hour long trip to the emergency room. But I cannot tell you the strength she felt having received the gift of the shirt, the declaration, the stickers. The shared journey of rare disease and fighting for more. She finally had the opportunity to wear her shirt to the hospital today for infusion.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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These shirts, the power of Gwendolyn’s legacy and your family mission, changes the atmosphere. Elizabeth is a “frequent flyer” at our Children’s Hospital. And in the category of “no cure, no good treatment”. So seeing her new shirt lifted the spirits of her favorite nurse, who asked all about it. And my heart too, knowing she chose to wear it, chose strength and fresh fight for today.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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So all of this to say THANK YOU for all you do. For being such an encouragement, and for creating something beautiful to embolden and encourage young warriors out there, who just need a little extra love along the way.”⠀⠀⠀⠀⠀⠀⠀⠀⠀
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Thank you Elizabeth and Julie. You are NEVER GIVE UP.⠀⠀⠀⠀⠀⠀⠀⠀⠀
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#mynevergiveup

We love birthdays 🥳 And we really love when peo

We love birthdays 🥳 And we really love when people choose to make a difference with their special day! By donating your birthday this year, you are helping to create a more inclusive future. And we just launched a Birthday Box with party favors, fundraising tips, and hoodies for the birthday person. Check it out! 🎉

Coming Soon in the NEVER GIVE UP. Shop ✨ NeverGi

Coming Soon in the NEVER GIVE UP. Shop ✨ NeverGiveUp.org #shopforgood

NEVER GIVE UP. is Family! Supporting each other th

NEVER GIVE UP. is Family! Supporting each other through good times and struggles. 💜 #mynevergiveup

Kiss your life. Accept it just as it is. Today. No

Kiss your life. Accept it just as it is. Today. Now. So those moments of happiness you’re waiting for do not pass you by. NEVER GIVE UP.

This amazing woman is @tabatha.ricci and, yes, she

This amazing woman is @tabatha.ricci and, yes, she is definitely TOUGH! A professional MMA fighter, Black Belt in Judô and Jiu Jitsu — and she’s going to teach us how to defend ourselves while also raising funding to build @gwendolynsplayground 👊💟🌈 I love when people use their talents to make a difference. Join us in learning these important skills and in giving back on March 6th (in SB) + 7th (in Ventura). Space is limited so be sure to register by donating >> NeverGiveUp.org/donate

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