I want you to meet our friends, the Zahn family: Noah, Barb, and baby Lucy. Lucy is the most darling little girl and this July she will turn one. And, yes, Lucy has SMA. On October 14th, Lucy Zahn was diagnosed with SMA Type 1. Within mere months and in ...
The Beb-e-ssentials fundraiser has been a big success! I love that everyone is so excited about their handmade order and so pleased with it when it arrives. And I just melt when I see the pictures of all the darling children wearing their Beb-e-ssentials ...
Nonfat, three pump, no whip, extra foam, grande mocha, please! That's my order every morning for the cutest barista on the block! Gwendolyn loves helping and every morning she and Daddy head down to the kitchen after brushing teeth and getting dresse ...
The 2nd Annual May Day for SMA Sidewalk Sale was a tremendous success, raising just over $5,000!!! With item donations from over a hundred different families, a dozen volunteers to run the event, and well over 500 shoppers, the sale exceeded all our expec ...
UPDATE: Lauren is running the New Jersey Marathon tomorrow, May 2nd! Please send her your support with a message on the Team Run For Owen website or the Fight For Owen Facebook fan page. Or you can still sponsor her race and help her reach her goal. Laure ...
Gwendolyn loves art -- especially coloring with markers and painting with watercolors and finger paint. Gramma usually brings a special art project every week. Lately they have been having lots of fun painting shapes and letters together...oh and stirring ...
Meet Stephen Taylor. Stephen is an incredibly inspiring guy who has enthusiastically joined Team GSF to raise funds for SMA research. On June 26th, Stephen is running the Western States 100 Ultra Marathon. The Western States 100 starts in Squaw Valley Cal ...
The butterfly in our logo is more than a design element. And while I have called Gwendolyn my little butterfly since she was a baby, it is more than that, too. Like a butterfly, SMA children have beautiful bright knowing spirits, but are delicate and fra ...
One 2 1/2 year old babysitter for hire with lots of experience. I give gentle snuggles, tickle toes, pat tiny baby bottoms, and know just how to put baby to sleep. Gwendolyn LOVES babies! And I mean loves! She looks when she hears a baby cry, she wants to ...
As you know Gwendolyn adoresmini horses. She just lights up whenever she is around them and clearly gets so much from seeing them. But Quicksilver, the mini horse breeder, is not super near us, which got me thinking about the possibility of being involved ...
