I often wish that SMA had never entered my life, that I never knew any of this pain, that I didn't have to face any of this. And as often as I so wish I could wipe my SMA slate clean, in all of this, I have met some of the most incredible people that ...
This weekend we had an awesome experience with Gwendolyn -- we took her to see Sesame Street Live!It was a day full of surprises and Gwendolyn was game for them all. She is always so ready for an adventure and I just love seeing her darling expression of ...
Everyone always comments about how tall Gwendolyn is. And, yes, she is very tall. Bill and I are average height -- okay, I'm short. So it is always comical to us that Gwendolyn just seems to stretch and stretch and keep stretching. And her legs -- he ...
100 Miles for Owen is jumping with action. Stephen Taylor who is running the Western States 100 Mile Ultra Marathon on June 26th is planning and inspiring all sorts of fun events in the Boston, Massachusetts area. We aren't quite sure where he finds ...
Team GSF has another incredible event coming up with another inspiring athlete: David Price. David and Bill went to USC together and when he learned of GSF through their mutual good friend, Matt Morse, David selected SMA as his cause to champion in his la ...
I'm obsessed. Totally and completely obsessed. I love the new iPhone photo apps and they've got me reinvigorated about documenting every second. Perhaps a little too much. I'm photographing everything -- mostly Gwendolyn. And the really nea ...
There are so many things that I plan to post about and just never get around to doing. One of those posts is how Bill and I spent our Valentine's Day this year -- at Sears. I know, romantic. But what WAS fun about buying a washing machine that day wa ...
Gwendolyn is a champ! She is transitioning to the Trilogy with ease and, thanks to the help of so many people, the last few days have been positive ones. The reality that her settings are now so high that she is even more vulnerable weighs heavily on us, ...
Remember the wonderful charm bracelet that I wrote about a few weeks ago -- a gift from a lovely woman named Tanya who sent this very personal and unique present out of the blue? Well after receiving so many requests and questions about it, we are very ex ...
We were so excited that the Santa Barbara Zoo hosted a super special Yo Gabba Gabba event on Friday with the REAL Plex and Brobee characters in attendance! Gwendolyn LOVES Yo Gabba Gabba and we knew she would LOVE the opportunity to meet the cast. We danc ...
