The "Big Girl" room is all decorated! And Gwendolyn absolutely loves it! It's amazing to me how much she expresses without uttering a single word -- and it is full approval and sheer pride. And she should be proud of herself. When we started this SMA ...
We had a very special visitor this week -- Ms. Lauren Lundy O'Connor aka SMA Getter aka Team Run For Owen aka Supreme Awesomeness!!! We adore Lauren! You may remember her from here or here. Or you may remember that in May Lauren ran the New Jersey M ...
Makenzie's Live, Laugh, Breathe Carnival --> is TOMORROW! TOMORROW! After months and months of planning and organizing the BIG day is almost here. Kendra has poured her heart and soul into making tomorrow a day full of fun... a day of magical entert ...
I'm home from visiting Grandpa Harry. I had a wonderful time being with him and I feel more whole for just spending a few days being next to him. Harry is one of the most influential people in my life. He loves me and dotes on me like any grandparent ...
The MRW Live, Laugh, Breathe Event is less than one week away (Saturday, July 17th) and it is going to be incredible!!! The Websters have created an entire festival -- a magical day for all families and all children! And admission is just $8.00!!! Magici ...
This is Jadon. Or "Bug" as his parents, Kristin and Tony Burks, lovingly call him. And this darling bright blue-eyed little boy just celebrated his first birthday! A first birthday that means so, so much because it is a day the Burks family were not cert ...
We had a really fun weekend and a great 4th of July. 1. It felt really nice to just be together. I don't know why because we are together quite a lot, but this weekend seemed a little slower...a little less doing and just being -- and I loved it.2. B ...
Stephen is amazing. Seriously, jaw-dropping amazing. Some folks never even lace up their tennis shoes, let alone run over 100 miles, through rugged terrain, battling both snow and heat -- all to help increase awareness of the disease that took the life of ...
The power chair is being ordered!!! Hazzah! After almost a year of preparation, trial and error, Jerry-rigging, tweaking, and lots of practice, practice, and more practice, we have found a system that works for Gwendolyn and she is ready to hit the road. ...
