The inspiring Jadon's Hope and Jim Baker are at it again! And with them you know it's going to be something BIG. As ifclimbing the 23,000 foot Mt. Aconcagua and raising over $45,000 for GSF's "$200K For SMA" fundraising campaign wasn' ...
Team Owen Trounces SMA in the New Bedford Half Marathon!
We are officially moved beyond words. Team Owen Simmons and all the amazing running that took place this Sunday to help fight Spinal Muscular Atrophy was simply incredible!!! Incredible. There is something just so selfless and poignant about people usin ...
Easter Bunny Must Have Goodies That Help End SMA
Easter is hoppity hopping on its way and your Easter goodies can help end Spinal Muscular Atrophy. Adorable bunny goodness + raising SMA research dollars = perfection! Be sure to put your order in asap -- only one month until the Easter Bunny hops to you ...
Killer B Fitness Goes the Extra Mile for SMA!
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer ...
Team Owen Simmons 100 Runners Strong; New Bedford Race in ONE Week
Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!! We are so moved by this ...
A Dream Come True
Firstly, thank you all so much for the many birthday wishes. You really made me feel special and cared for -- and your messages, cards, and Facebook posts meant a lot to me (although Bill said I was clogging up his fb feed )!!! I have to say that this m ...
Hayden’s Comfy Cushies—> Must Have Padding for the EASyS
SMA families are exceptionally creative -- out of necessity and out of devotion. And Hayden Calafiore's grandmother, Shelly, is proving this once again. There is pretty much one stroller/wheelchair option for SMA Type 1 families -- the EASyS. The EA ...
Friends, Friends, and More Amazing Friends
We have been spending lots of time with our wonderful friends. We've gone to visit, we've had visits, and we are loving every single minute! I drove down to L.A. to spend the day with one of my dearest childhood friends, Theresa. Theresa is so c ...
Jewelry To End SMA
Uber talented Barb Zahn has done it again. Writer and Artist - check. Etsy shop owner - check. Amazing mom who shaved her head and turned it into a $13,000 spinal muscular atrophy research fundraiser - check. And now, thanks to the super talented Kim Jaku ...
Good Things For Gwendolyn—Valentines
I can't believe it has been a week since Valentine's Day and I haven't posted about the many, many good things. Bottom line -- Gwendolyn loved all of it! Valentine Party. Our Valentine fun began with a party hosted by our friend Marina a fe ...