To be honest, I've always felt a bit odd about Father's Day. Sure I appreciate being appreciated, but I don't ever feel unappreciated. And I definitely don't need a dedicated day every year to remind me how fortunate I am to be Gwendol ...
Getting Back To Normal
I just want to thank everyone for being so supportive this last week. SMA is tough and while Bill and I always try to focus on what we can control and what we can do to make a difference, sometimes the reality of what we are facing becomes too much. I kno ...
Gwendolyn Tests Tobii and an Act of Kindness Leaves Us Speechless
We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster.Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This "computer" is able to ...
Blueberries, BBQ, and I Madonnari
We had a wonderful weekend filled with friends, sunshine, and even some new adventures. On Friday we went to a friend's house for a play date. On Saturday we went blueberry picking at a charming farm. On Sunday we went to a BBQ at a friend's hou ...
Good Things For Gwendolyn: Being Like Her Friends – Reading, Climbing
It has been an exciting week at school this week. Gwendolyn "climbed" a tree and this is now her favorite thing to do. She saw all the other big girls in the tree and looked at me with an expression that said, Mom, we are doing this. It took some navigati ...
100 Miles For Owen. Stephen Taylor Running Western States 100 (Again)
100 miles. 100 miles in 30 hours. 100 miles though the Sierra Nevada Mountains. 100 miles through extreme heat and even snow. Yep, that crazy Stephen Taylor is doing it again -- 100 miles for Owen! And we think he's incredible!Held the last weekend ...
Team Jenna Raises Over $1,200 and Races This Sunday
Meet Jenna Boguhn. A spunky six-year-old who loves school, having painted nails, playing dress up, and being with her two older sisters. And while Jenna is so much like any other adorable six-year-old, Jenna has Spinal Muscular Atrophy. This Sunday, Rene ...
Rummage To Cure in Santa Barbara Raises $3,400 for The GSF
Santa Barbara's Rummage To Cure was a HUGE success and Team Gwendolyn ROCKS! Yep, they are A-M-A-Z-I-N-G! And Saturday's sale was another example of their awesomeness. So many in the community got involved. So many made this a success. And we ar ...
Our Dancing Diva
Gwendolyn loves music. She always has. Her favorite is to play music in the car (loudly and with the sunroof open) and to dance like crazy as we roll up to preschool or therapy. But she doesn't like any old song -- she likes a beat. She's so spe ...