Team Callie is gearing up for the North Carolina Marathon and we are so proud of them. In honor of adorable, sweet, precocious Callie Golden, her father, Nathan, is racing on November 19th with a team of 20 by his side. Team Callie will be tackling the f ...
This is the last birthday celebration post. We had so much fun that it was just too much to cram into one post; hope you aren't tired of the big 4 hullabaloo. To be honest it has been nice for us to reflect on this milestone and truly appreciate all ...
Sweet Revenge: A Benefit in Memory of Ciara Rose Van De Loo was a cupcake, wine and beer tasting held at the Gnarly Vine in New Rochelle, New York -- and it was an incredible night for many reasons. The amazing Van De Loo family turned what should have b ...
Wow! Wow! Wow! Thank you all so very much for your thoughtful comments, facebook messages, cards and gifts. Gwendolyn is certainly a very lucky little girl and we are so thrilled to celebrate this special and big milestone with all of you. I have to say t ...
If you've been reading this blog for long, then you already know about our love for the amazing Shuler family and their beautiful baby boy, Owen. Owen Vincent Shuler was born March 7, 2008. Just like Gwendolyn he was diagnosed with SMA Type 1. And j ...
This week we took Gwendolyn's 4th birthday photos with the incredible Jennifer Foster from Z's the Day Photography. Yep, in just a little over a week our baby will be a big four-year-old -- and she knows it. Miss G has been so proud of herself l ...
What a positive night. Yesterday evening Gwendolyn became an "Honorary Vaquero Captain" at Santa Barbara City College's football practice. The big game and her "official" Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team ...
Yep, you read that correctly. Miss G had her first day of preschool yesterday and it was AMAZING! Absolutely positively a very, very "Good Thing for Gwendolyn!" The second we asked Gwendolyn if she would like to start going to school again, her little fin ...
Super Miss G is doing great. Really great. As in almost fully back to normal. The blood transfusion was a success and we were sent home after just one day with Gwendolyn's lips more ruby than we have seen in weeks. I'm so sorry we are just posti ...
We absolutely LOVE Team GSF team members! We love, love, love them. We love the way they challenge themselves, we love how they motivate others, and we love that they push their bodies to the limits to make a difference for SMA. Team Lucy's Legs is a ...
