Not unlike the connection I have with my Mom, Gwendolyn and her Gramma have an extremely unique and special bond, too. We've written about it before, but Gramma happily drives 80 miles each way from Los Angeles to Santa Barbara every week to spend ti ...
Gwendolyn and Little Star have an awesome connection. He is her buddy for sure, but what I am coming to realize is that Little Star loves Gwendolyn just as much as she loves him. He is so gentle with her and so eager to be by her side. She loves to feed h ...
A big night of fun, a silent auction, T-shirt sales, corporate sponsorships, Belay Teams, and the tallest peak in the Western Hemisphere climbed = a massively successful fundraiser!!! That's right, Jadon's Hope and their Climb4SMA campaign rais ...
The Howell family of Alberta, Canada have done it again! Their 2nd Annual Life For Lexx Casino Night has raised $10,000 for GSF's "$200K for SMA" gene therapy research campaign!!! Yes, $10,000! And they had tons of fun in the process. The Howell' ...
Sweet baby Amanda is only 5 months old, but already her parents have taken the SMA bull by the horns. Not only did they fly from Panama to meet with multiple SMA experts and get their daughter the highest quality of care, but they have also taken on fund ...
Our sweet butterfly is napping right now. I'm sitting next to her listening to the rhythmic pattern of her bipap helping her to breathe and I can't not be right by her side. I'm so, so glad to be feeling better just so I can be near my littl ...
This past weekend I went on a surprise getaway with four of my girlfriends (Laurie, Ronda, Marina and Sarah) for Sarah's birthday. It was planned, organized and orchestrated by her amazing husband, Mike, and it was all a surprise until Saturday morni ...
This was supposed to be a good things post and there are lots of "Good Things For Gwendolyn" for me to post about -- she started preschool again this week, she held a salamander yesterday, she did a little bit of gardening (not really her thing), she swun ...
Remember the awesomely creative Trike-A-Thon fundraiser put on by my two childhood friends? This got me all throat lumpy at just the idea -- I'm telling you, children helping children just does it to me -- and then to see the pictures, well I should ...
The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response -- making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. C ...
