We are officially moved beyond words. Team Owen Simmons and all the amazing running that took place this Sunday to help fight Spinal Muscular Atrophy was simply incredible!!! Incredible. There is something just so selfless and poignant about people usin ...
Easter is hoppity hopping on its way and your Easter goodies can help end Spinal Muscular Atrophy. Adorable bunny goodness + raising SMA research dollars = perfection! Be sure to put your order in asap -- only one month until the Easter Bunny hops to you ...
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer ...
Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!! We are so moved by this ...
Firstly, thank you all so much for the many birthday wishes. You really made me feel special and cared for -- and your messages, cards, and Facebook posts meant a lot to me (although Bill said I was clogging up his fb feed )!!! I have to say that this m ...
SMA families are exceptionally creative -- out of necessity and out of devotion. And Hayden Calafiore's grandmother, Shelly, is proving this once again. There is pretty much one stroller/wheelchair option for SMA Type 1 families -- the EASyS. The EA ...
We have been spending lots of time with our wonderful friends. We've gone to visit, we've had visits, and we are loving every single minute! I drove down to L.A. to spend the day with one of my dearest childhood friends, Theresa. Theresa is so c ...
Uber talented Barb Zahn has done it again. Writer and Artist - check. Etsy shop owner - check. Amazing mom who shaved her head and turned it into a $13,000 spinal muscular atrophy research fundraiser - check. And now, thanks to the super talented Kim Jaku ...
I can't believe it has been a week since Valentine's Day and I haven't posted about the many, many good things. Bottom line -- Gwendolyn loved all of it! Valentine Party. Our Valentine fun began with a party hosted by our friend Marina a fe ...
The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful ...
