SMA families are exceptionally creative -- out of necessity and out of devotion. And Hayden Calafiore's grandmother, Shelly, is proving this once again. There is pretty much one stroller/wheelchair option for SMA Type 1 families -- the EASyS. The EA ...
The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful ...
Yep...it's an extra special, super duper, really big, awesome, stupendous surprise... just in time for Christmas! Gwendolyn's POWER CHAIR ARRIVED! EEEEEEEEEEEE! Yipee! Yipee! We are pretty darn excited around here...but most importantly, Gwendol ...
The power chair is being ordered!!! Hazzah! After almost a year of preparation, trial and error, Jerry-rigging, tweaking, and lots of practice, practice, and more practice, we have found a system that works for Gwendolyn and she is ready to hit the road. ...
Gwendolyn loves her bath. She gets so excited when we ask her if she's ready. It is definitely one of her favorite times of the day. She can move her arms and legs in the water. She gets to sing songs. She gets to play with her toys. And then when it ...
As you know Gwendolyn adoresmini horses. She just lights up whenever she is around them and clearly gets so much from seeing them. But Quicksilver, the mini horse breeder, is not super near us, which got me thinking about the possibility of being involved ...
