The inspiring Team Lucy's Hope For A Cure have reason to celebrate -- with exactly a month to go they have nearly reached their $10,000 goal for their To Shave or Not To Shave campaign, raising over $8,000 so far! And they have been working hard to d ...
The amazing Beb-e-ssential ladies, Penny and Melissa, have blown us away and we are so excited to share their exciting story! Not only did Penny and Melissa hold a GSF fundraiser, raising over $1,000 through sales of their darling handmade children's ...
I often wish that SMA had never entered my life, that I never knew any of this pain, that I didn't have to face any of this. And as often as I so wish I could wipe my SMA slate clean, in all of this, I have met some of the most incredible people that ...
100 Miles for Owen is jumping with action. Stephen Taylor who is running the Western States 100 Mile Ultra Marathon on June 26th is planning and inspiring all sorts of fun events in the Boston, Massachusetts area. We aren't quite sure where he finds ...
Team GSF has another incredible event coming up with another inspiring athlete: David Price. David and Bill went to USC together and when he learned of GSF through their mutual good friend, Matt Morse, David selected SMA as his cause to champion in his la ...
Remember the wonderful charm bracelet that I wrote about a few weeks ago -- a gift from a lovely woman named Tanya who sent this very personal and unique present out of the blue? Well after receiving so many requests and questions about it, we are very ex ...
I want you to meet our friends, the Zahn family: Noah, Barb, and baby Lucy. Lucy is the most darling little girl and this July she will turn one. And, yes, Lucy has SMA. On October 14th, Lucy Zahn was diagnosed with SMA Type 1. Within mere months and in ...
The Beb-e-ssentials fundraiser has been a big success! I love that everyone is so excited about their handmade order and so pleased with it when it arrives. And I just melt when I see the pictures of all the darling children wearing their Beb-e-ssentials ...
The 2nd Annual May Day for SMA Sidewalk Sale was a tremendous success, raising just over $5,000!!! With item donations from over a hundred different families, a dozen volunteers to run the event, and well over 500 shoppers, the sale exceeded all our expec ...
UPDATE: Lauren is running the New Jersey Marathon tomorrow, May 2nd! Please send her your support with a message on the Team Run For Owen website or the Fight For Owen Facebook fan page. Or you can still sponsor her race and help her reach her goal. Laure ...
