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Fight For Owen Bowling Night

If you've been reading this blog for long, then you already know about our love for the amazing Shuler family and their beautiful baby boy, Owen. Owen Vincent Shuler was born March 7, 2008. Just like Gwendolyn he was diagnosed with SMA Type 1. And j ...

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Team Lucy’s Legs

Sweet Lucy Zahn has inspired a team of supporters! Her spunky spirit is motivating people to not only learn about SMA, but to get involved in helping end it! Team "Lucy's Legs" will be riding 90 miles around Lake Winnebago this weekend in Race The La ...