We are officially moved beyond words. Team Owen Simmons and all the amazing running that took place this Sunday to help fight Spinal Muscular Atrophy was simply incredible!!! Incredible. There is something just so selfless and poignant about people usin ...
Easter is hoppity hopping on its way and your Easter goodies can help end Spinal Muscular Atrophy. Adorable bunny goodness + raising SMA research dollars = perfection! Be sure to put your order in asap -- only one month until the Easter Bunny hops to you ...
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer ...
Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!! We are so moved by this ...
SMA families are exceptionally creative -- out of necessity and out of devotion. And Hayden Calafiore's grandmother, Shelly, is proving this once again. There is pretty much one stroller/wheelchair option for SMA Type 1 families -- the EASyS. The EA ...
Uber talented Barb Zahn has done it again. Writer and Artist - check. Etsy shop owner - check. Amazing mom who shaved her head and turned it into a $13,000 spinal muscular atrophy research fundraiser - check. And now, thanks to the super talented Kim Jaku ...
The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful ...
A big night of fun, a silent auction, T-shirt sales, corporate sponsorships, Belay Teams, and the tallest peak in the Western Hemisphere climbed = a massively successful fundraiser!!! That's right, Jadon's Hope and their Climb4SMA campaign rais ...
The Howell family of Alberta, Canada have done it again! Their 2nd Annual Life For Lexx Casino Night has raised $10,000 for GSF's "$200K for SMA" gene therapy research campaign!!! Yes, $10,000! And they had tons of fun in the process. The Howell' ...
Sweet baby Amanda is only 5 months old, but already her parents have taken the SMA bull by the horns. Not only did they fly from Panama to meet with multiple SMA experts and get their daughter the highest quality of care, but they have also taken on fund ...
