What a positive night. Yesterday evening Gwendolyn became an "Honorary Vaquero Captain" at Santa Barbara City College's football practice. The big game and her "official" Vaquero Captain duties will be this Saturday at 5:45 pm, but the coaches, team ...
We asked families impacted by SMA to submit a photo and share something they would want others to know about them/their child. And this is what we received. Speechless. Simply speechless.These families and their stories represent what this disease really ...
Earlier this week the City of Santa Barbara officially declared August as SMA Awareness Month for the third year in a row. The City of Santa Barbara has consistently been supportive of our efforts to end SMA and Mayor Helene Schneider has always been extr ...
Awesome things are happening around the globe for SMA Awareness Month and some are dee-lish. Sweet Amanda Cardoze just celebrated her 1st birthday yesterday. At just one-year-old she is already a warrior -- a big smiling, pool-loving snuggler. Amanda has ...
Awesome news! The state of California has once again declared August as SMA Awareness Month. You may recall the declaration last year, but there is much more to this year's declaration. The proclamation doesn't just pertain to this August. Nope. ...
The Strawberry Festival in Troy, Ohio was just a few weeks ago and it was amazing! The truly remarkable Penny and Melissa, who own the fabulous children's accessory storeBeb-e-ssentials,hosted a booth at the festival and made it their mission to incr ...
Children helping children...it gets me every time! And I love it! Students at Hopkins West Junior High in Minnetonka, Minnesota were asked to select a charity to design a service project around. And they chose Spinal Muscular Atrophy and the Gwendolyn Str ...
The Indoor Triathlon hosted by Killer B Fitness was a huge success. Nearly 50 participants sweated it out to support the Gwendolyn Strong Foundation and help end Spinal Muscular Atrophy -- and they had fun doing it. Bob and Lisa Wilcher, owners of Killer ...
Team Owen Simmons is now 100 runners strong -- 30 of whom are running their first race!!! WOW! WOW! And triple WOW! And this dedicated group of SMA Warriors are motivated and determined to help stomp out Spinal Muscular Atrophy!!! We are so moved by this ...
The Hope Calendar has been such a success! People love the beautiful images and have been so excited by the response -- making them a cinch to sell. We are now closing out this fantastic fundraiser and so it is the official LAST CALL to order your own. C ...
