My dearest Gwendolyn, You are my darling buttercup my little miss sparkle my sunshine my breath my light You are goodness and grace courage and resilience laughter and love You are all that is right in the world ...
Busy, Busy, and Parties Galore
We are busy - with a capital B. It is all wonderful, fabulous, really super positive stuff. But, we've got irons in just about every fire and it is keeping us on our toes. In SMA news...there is, of course, the Helmet of Hope contest (please, please, ...
Gwendolyn’s Birthday Bonanza Giveaway #2: Bella Claire Baby Bloomers
Drum roll please....the winner of the "Gwendolyn Necklace" by Cristina Ashley Designs is... Ann Walker! Ann is going to give her necklace to Molly, who lost her daughter, June, to SMA. We are so happy for her to win this and we know Molly will love it. Co ...
Little Star Love
Gwendolyn is in love -- L.O.V.E. His name is Little Star and he is her mini horse best friend!!! Little Star moved to a new home over by the beach about three weeks ago and we have been going out to see him every chance we get. The best part is Gwendolyn ...
Fun Visit With Family
We had so much fun visiting with my sister, brother-in-law, and nephews...and Grandpa came over, too. They are the best and there is nothing like laughing the night away with them. And Gwendolyn loves being read to, smothered with hugs and cuddles, kisse ...
Feeling Back To Normal…Almost
Well, we are feeling back to normal...almost. Each time we have some sort of misstep, it takes a while to recover. But with Gwendolyn doing so well, we are feeling the spring in our step once again. And thank goodness (hallelujah!) she is feeling so much ...
Big Girl Room For Our Sweet Big Girl
The "Big Girl" room is all decorated! And Gwendolyn absolutely loves it! It's amazing to me how much she expresses without uttering a single word -- and it is full approval and sheer pride. And she should be proud of herself. When we started this SMA ...
Special Visitor: The SMA Fighting DIVA!!!
We had a very special visitor this week -- Ms. Lauren Lundy O'Connor aka SMA Getter aka Team Run For Owen aka Supreme Awesomeness!!! We adore Lauren! You may remember her from here or here. Or you may remember that in May Lauren ran the New Jersey M ...
Missing Grandpa Harry
I'm home from visiting Grandpa Harry. I had a wonderful time being with him and I feel more whole for just spending a few days being next to him. Harry is one of the most influential people in my life. He loves me and dotes on me like any grandparent ...
Little Miss Firecracker
We had a really fun weekend and a great 4th of July. 1. It felt really nice to just be together. I don't know why because we are together quite a lot, but this weekend seemed a little slower...a little less doing and just being -- and I loved it.2. B ...