Before unexpectedly driving 5 hours north to Stanford, we had a fabulous planned long weekend 5 hours east of Santa Barbara visiting some great friends in Las Vegas, Nevada. Viva Las Vegas! Whoa, the G-Van is really racking up the miles these days... Gwen ...
We Are Home and There Is No Place Like It!
We are home! We are home! And everyone is doing fine. Gwendolyn is such a trooper, but she definitely had enough of being poked and prodded and beamed from ear to ear as we marched out those hospital doors -- in a Dorothy dress no less and with new toys ...
Acts of Kindness: A Wizard of Oz Surprise in Memory of Chloe
Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this w ...
A Royal Tea Party in Oz
This weekend Gwendolyn received a very special package of gifts (more on that later) -- one of which is a Wizard of Oz tea set. Gwendolyn has been in heaven playing with it. We had a tea party yesterday with Laurie, Chris and Connor at the Santa Barbara ...
Long Weekend Love
Oh what a weekend! Prepare for photo overload because we have been having a blast enjoying the warm weather with friends and celebrating our favorite fella's birthday. On Saturday Bill got to spend the day golfing with our friend Will, while I got ...
Father’s Day Under the Big Top
To be honest, I've always felt a bit odd about Father's Day. Sure I appreciate being appreciated, but I don't ever feel unappreciated. And I definitely don't need a dedicated day every year to remind me how fortunate I am to be Gwendol ...
Getting Back To Normal
I just want to thank everyone for being so supportive this last week. SMA is tough and while Bill and I always try to focus on what we can control and what we can do to make a difference, sometimes the reality of what we are facing becomes too much. I kno ...
Gwendolyn Tests Tobii and an Act of Kindness Leaves Us Speechless
We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster.Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This "computer" is able to ...
Blueberries, BBQ, and I Madonnari
We had a wonderful weekend filled with friends, sunshine, and even some new adventures. On Friday we went to a friend's house for a play date. On Saturday we went blueberry picking at a charming farm. On Sunday we went to a BBQ at a friend's hou ...
Good Things For Gwendolyn: Being Like Her Friends – Reading, Climbing
It has been an exciting week at school this week. Gwendolyn "climbed" a tree and this is now her favorite thing to do. She saw all the other big girls in the tree and looked at me with an expression that said, Mom, we are doing this. It took some navigati ...