Last Friday Gwendolyn received a surprise package in the mail. I already told you about the special Wizard of Oz tea set and boy does she love this. But the gifts also included a set of Wizard of Oz dolls and a Wizard of Oz sticker book. Now to say this w ...
I've been a little quiet around here and that is because I've been saying goodbye to one of the most important people in my life -- Grandpa Harry. Losing Harry (and yes, I called him by his name -- everyone did) has been extremely hard. There ar ...
Harry Reese GillespieJune 27, 1905 - March 30, 2011My grandfather Harry passed away this week and I am devastated. He was 105 years old and while I know this is the normal course of life, this is an enormous loss for me and anyone who knew him. He was kin ...
On Thursday night we learned that our dear sweet special friend Jonas Coleman had passed away -- a gorgeous blue-eyed almost 3-year-old darling little boy. Tomorrow is his funeral. And we are heartbroken.And while I try to sit with the thoughts of him no ...
I want to tell you about some very special people. Very special families who even after losing their treasured children keep fighting. It isn't easy. Grief does many things to people. Living in the SMA world, we are witness to grief in its varying fo ...
I'm home from visiting Grandpa Harry. I had a wonderful time being with him and I feel more whole for just spending a few days being next to him. Harry is one of the most influential people in my life. He loves me and dotes on me like any grandparent ...
I often wish that SMA had never entered my life, that I never knew any of this pain, that I didn't have to face any of this. And as often as I so wish I could wipe my SMA slate clean, in all of this, I have met some of the most incredible people that ...
