We had a great weekend. Gwendolyn is responding really well to the Robinol. It seemed to work immediately. At first we thought we were being overly optimistic, but after witnessing the same thing for three days, the Robinol really does seem to control the excessive secretions within 30 minutes of giving it to her. And it works for several hours. We also noticed that we have been able to hold Gwendolyn up for longer and she has tolerated being off BiPAP more often and for longer periods. Before this weekend Gwendolyn was on BiPAP almost 24/7. This has been difficult, not really for Gwendolyn but for us, because it limits what we can do with her, how we entertain her, and, the most difficult, it interrupts snuggles. Perhaps without so much energy being spent on controlling secretions, she is able to use that extra effort to breathe off BiPAP. We will take it! The icing on the cake was we went to a really fun Christmas party and got to hold Gwendolyn while we were there. She loved it. We loved it. And the party was a blast. (Thank you Blabeys for a wonderful night.)
