In all of the sadness and the grief that comes with SMA…in all of the frustration with having to fight for so much while sometimes barely holding on…in all of the years we've now lived with this disease — the kindness of others continually amazes us and leaves us simply speechless. Sometimes its a simple gesture of acceptance. Sometimes it is a thoughtful consideration. Sometimes its the incredible generosity of both friends and strangers. It always leaves us uplifted and certain that while we are in enormous pain, there is so, so, so much good in this beautiful, wondrous world. We truly cannot begin to thank you all adequately for supporting us, encouraging us, and loving our little girl.
Thank you Chris for creating this wonderful video — out of the blue, for no reason, just because…Speechless…simply speechless….