SANTA BARBARA, CA – November 7, 2011 – The Gwendolyn Strong Foundation (theGSF), a Santa Barbara-based nonprofit organization dedicated to increasing global awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, and accelerating research focused on ending this cruel disease, has refreshed its brand and launched a new website, blog, and online store offering trendy merchandise featuring their new “NEVER GIVE UP.” slogan.
“We received our nonprofit exemption in August 2009 and since then we have accomplished so much,” said Victoria Strong, theGSF co-founder. “With the support of countless around the globe, we’ve raised nearly $1 Million, increased awareness of SMA, and have had a material impact on this brutal disease. But there is still much work to be done. Children with SMA never give up and neither will we. Our new brand and online presence clearly reflects where we’ve been and paves the way for our strategic direction as we look to the future.”
To explore the new theGSF website, please visit theGSF.org.
To browse the new theGSF shop, please visit theGSF.org/shop.
To make a tax-deductible donation to theGSF, please visit theGSF.org/donate.
About SMA: SMA is a terminal, degenerative genetic disease that impacts the voluntary muscles in infants and children, including the ability to walk, sit, stand, eat, breathe, and even swallow, while cognitive ability is never affected. Ninety percent of children born with SMA die before the age of two. One in every 40 people or nearly 175 Million globally unknowingly carry the gene responsible for SMA. There is currently no treatment or cure and although SMA research is underfunded, it is extremely advanced. theGSF is focused on helping ensure resources are not the obstacle in attaining that cure.
About Gwendolyn Strong Foundation (theGSF) – theGSF is based in Santa Barbara, California and seeks to increase awareness and research funding for Spinal Muscular Atrophy (SMA), the leading genetic killer of young children. To learn more about SMA and theGSF, please visit theGSF.org