On September 11, 2012, the House Energy and Commerce Committee’s Health Subcommittee passed H.R. 6163, the National Pediatric Research Network Act. Speaking on the bill’s behalf, Rep. Lois Capps (D-CA) singled out spinal muscular atrophy (SMA) as one of the rare pediatric disorders for which this bill will help find a treatment. She also mentioned Gwendolyn’s name and we couldn’t be more proud.