There have been so many amazing fundraisers happening over the last few months hosted by so many incredible people. And shame on me for not sharing them sooner because they are awesome! And because of all of these wonderful people, we are that much closer to helping move the needle on promising gene therapy research in desperate need of funding.
One such event was hosted by the Golden family in North Carolina whose daughter Callie has SMA Type II. Callie is absolutely melt-your-heart adorable and the Golden's are amazing parents. Callie is their fourth child, yes fourth, their only daughter, and their only child with SMA. She was just diagnosed a few months ago and you can imagine their shock. But, the Golden family have rolled up their sleeves, all while juggling four children, a new diagnosis and full-time jobs, to increase SMA awareness and funds for research. They are amazing!
Their first fundraiser was a giant success! They hosted a spaghetti dinner at their church with 240 attendees. It was decorated beautifully by many fantastic volunteers. They created a really professional and thorough booklet for each guest with information about SMA and the many children it impacts. Callie's mom, Christy, gave a wonderful talk and they also had their pediatrician speak about SMA. And… they raised $1,500 — triple their initial goal!!! Wow!
A friend of the Golden family, Ruth Edwards, then decided to donate a percentage of all Mary Kay sales to GSF from here on out! She has already raised an additional $125 for SMA research! Just type “SMA” in the comment section and you, too, can contribute.
And this Sunday a concert is being held in Callie's honor. It is being held at First Baptist Ware Shoals in South Carolina and begins at 6:30. If you are near the area head on over and meet this amazing family!!!
Thank you Golden family for joining $200K for SMA and helping make a difference! Together we can end SMA!!! One person, one dollar at a time!!!