Sweet baby Amanda is only 5 months old, but already her parents have taken the SMA bull by the horns. Not only did they fly from Panama to meet with multiple SMA experts and get their daughter the highest quality of care, but they have also taken on fundraising for SMA research. With the help of friends, Marcela and Juan organized a wonderful day of fun at KIDS PLAYGROUND, a popular birthday party destination in Panama. Over 200 people attended and they had games, a raffle, and lots of delicious food to make for an all around great day.
From Marcela:
The event was a huge success, the kids had lots of fun!
– We had candy, chocolate, and chips donated by Felipe Motta (they are a distributor and store in Panama)
– We had food donated by 3 caterers: Nicolina, Betzabe and Sofy
– We had activity gift sets donated by Farmacias Arrocha
– The place where the event took place (KIDS) was donated by the owner Tatiana Capriles and she also donated a piata, popcorn, sodas and the decorations.
We had a raffle and the prizes were donated; they were:
- 1 night stay in Bristol Buenaventura hotel in a superior room (this is a luxurious beach resort in Panama) the night stay has a value of $450.00
- 1 necklace “Ginette” (they are the initials necklaces that many celebrities have) donated by Joyeria Barakat valued in $800.00
- 1 bracelet donated by UMA Boutique valued in $50.00
- 1 keychain donated by UMA boutique in $35.00
And in addition to this fantastic event, Marcela has been actively asking friends and family across the world to donate to the Gwendolyn Strong Foundation for SMA research in Amanda's honor. And because of their efforts…drum roll…$6,500 has been raised for GSF's “$200K for SMA” gene therapy research campaign!!!
Thank you so much Juan, Marcela, and beautiful Amanda for fighting so hard. You are making a difference!