When Gwendolyn was first diagnosed, within two weeks we were hit like a ton of bricks with the reality of SMA -- a consultation trip turned into a month-long hospital stay at Stanford, new routines, new machines, a surgery, so much uncertainty, a failed ...
We are speechless. Completely without words. Doors are opening for our little girl and because of an incredible act of kindness, they are opening even faster.Yesterday we had a trial for the Tobii Eye Gaze Communication Device. This "computer" is able to ...
SMA families are exceptionally creative -- out of necessity and out of devotion. And Hayden Calafiore's grandmother, Shelly, is proving this once again. There is pretty much one stroller/wheelchair option for SMA Type 1 families -- the EASyS. The EA ...
The Gooden family has been hard at work creating a really incredible resource for SMA families -- InsideSMA. I always love when families come up with something new and innovative to help others!!! The tips, tricks, and advice on here are really wonderful ...
Three words:Camping with Hayden! Yep and that equals a VERY happy little girl...make that two very happy little girls...and four very happy parents watching them. Visualize: fishing, dancing, camp fire, sparklers, family, FUN! Chris and Jennifer set every ...
Yep...it's an extra special, super duper, really big, awesome, stupendous surprise... just in time for Christmas! Gwendolyn's POWER CHAIR ARRIVED! EEEEEEEEEEEE! Yipee! Yipee! We are pretty darn excited around here...but most importantly, Gwendol ...
Two weeks ago I posted "Good Things For Gwendolyn" about some of the fun, positive things in Gwendolyn's life. I have seen other bloggers make lists of positives -- especially during a difficult time -- and I love it. I have even seen some make their ...
GwendolynStrong.com has been a bit heavy of late. And while all of this is going on for Bill and me, we try really hard to not let it be part of Gwendolyn's life. No, Gwendolyn is 3 and should get to be just 3! And like most 3 year olds, the world i ...
Ahh what a weekend! It was awesome!!! GSF's Golf For A Cure was held on Friday (more on that soon) and we were so, so excited that several of our SMA friends came into town to support it and spend time with us. The Calafiore's, Chris and Jennife ...
The first day of preschool was a hit! An absolute standing ovation!!! And Gwendolyn can't wait for more today. There are so many things that went really well, and I am so excited about it all, but there are a couple little stories that just stood ...
